It’s painful to write this right now at 430am as I lay in a hospital bed in my bedroom. My life has been turned upside down.
That may sound dramatic and maybe on the outside it is, but in August I just celebrated the 5 year anniversary of starting this blog and my YouTube channel. That was shortly after being told I had finally been in remission for the past 5 years from the severe Crohn’s Disease and Colitis that had been plaguing me for 14 years. Then, suddenly, the remission ended. Within weeks I was deteriorating and in the hospital again.
All of the work I had done to make my body stronger the last year in a program in order to play with my two year old was gone. All of our plans for the immediate future as a family. Gone. My daughter’s 2nd birthday is a blur for me and I didn’t get to help her go trick or treat for the first time.
Hurricane Milton came and went as a blur in my mind as my wife periodically had to carry me into our interior room every time there was a major tornado threat.
What had happened?! That was all I could think over and over in my mind.
I appreciate this moment to feel sorry for myself. I know everyone has craziness in their lives so no one wants to be brought down by yours. I get that. I just wanted to record this where I first started it.
Life in perspective
Unfortunately not even doctors could definitively answer my question. All they can say is that some patients just stop taking to the medication. I won’t lie, this has been one of the hardest periods of my life to try to process.
This has always been a photo journal for me besides where I record my film adventures. Therefore I like to share life updates. Even if just for myself.
For example, I was able to go back to my posts from 2019 and read about the last time this had happened to me, back when I started my love for film.
At that point I started learning film and manual exposure, and photography became something so important to me that I never stopped sharing my content for the next 5 years.
I don’t know what my future holds now as far as my film photography goes. A lot of plans are being necessarily pushed to the side for now, but I’d like to revisit where I started with you all.
I want to start taking photos of my journey again, and use it to help myself get through these difficult times the way I did in 2019.
A lot of times Illness is the body’s way of telling you to slow down. I was definitely pushing myself very much to get where my family and I wanted us to be before this happened.
I have a very long way to go to walk again. I have to start over with a new medication once it can be approved by the powers that be. I hope you’ll come along with me. Either way that is what I will be sharing here for the foreseeable future. Any positivity and cheerleading along the way would be an added bonus.
Finally, this saying was born from the beginning: stay motivated and keep shooting.
Maybe you can find comfort with GOD, the book GOD’s way of how to survive an occult group for Christians, Jews, and Muslims: Children of Light v. Children of darkness – shows you how to get your personal relationship with GOD. Also how to make pacts with him and maybe he can heal you and your life.
I am so sorry to hear you were in remission – and then not. Crohn’s and UC are awful. Continue to do what you can to have a normal life in the middle of all this and I hope your new medication works. Sometimes we need to feel sorry for ourselves – it makes reality easier because we are being honest about our feelings and frustrations and so on. Keep on posting, telling us how you are doing, and know there are many of us out in bloglandia who are concerned and hope you recover and wish you the best. <3
Thank you very much
I hope this new medication is approved quickly and works well for you! I can only imagine how deeply frustrating and disappointing this relapse must be.
Thanks Jim. It’s definitely been extremely hard to wrap my head around all of this.
Wishing you all the best. Hoping you are better soon.
Thank you Merlin
We wish you and your family well, Aly. xx
Thank you
Aly, wishing you a speedy recovery!
Greg & Gabriella (Italy)
Thank you!
I am so sorry that you have had a relapse. I have enjoyed your photos and your writing and I hope you will be able to get back on your feet soon.
Thank you Walter!
Aly, I am so sorry this is happening to you again. For what it’s worth, I will be following along, and championing for a speedy recovery! Say “Hi!” to Kelsey for me!
Thank you she says hi back!
Please accept a message of support from across the pond. I have always greatly enjoyed your camera videos but life and your family come first. Get well Aly.
Chris (UK)
Thank you Chris. I greatly appreciate it
Aly,
Stay with it. I know from personal experience how dark things can get when you are confronted with devastating health issues.
Mental health is as important in these situations as physical health. I was put on medication. I couldn’t manage my health issues without them.
I wish you well and I’ll be following you on your journey.
What happened to you sucks. But you’re a fighter.
Thank you 🙏
Oh man, I am so sorry to hear this. Hopefully things will get better for you.
Thank you. I appreciate it
Wow! Of course I’ll come along with u! As a photog in her 70s with MS, I can relate to you. Hang in there Dear!! 💋
Thank you! My Aunt had MS so my heart is definitely with you!